Adrian Haigh
Senior Vice President and General Manager Emea and Asia Pacific Region · PTC Therapeutics
Alessandra Ferlini
Director of the Medical Genetics Section & Unit · University of Ferrara
Alexion Pharma Netherlands B.V.
Alexion Pharma Netherlands B.V.
Alexis Arzimanoglou
Coordinator of the European Reference Network for Rare and Complex Epilepsies · EpiCARE
Alicia Be
Senior Account Manager · FIPRA International
Alicia Granados
Global Head Scientific Advocacy and Insights · Sanofi
Amanda Bok
Chief Partnerships Officer · The Synergist
Anjan Aralihalli
President & Founder · Raya Therapeutic, Inc.
Anna Bucsics
Project Advisor · MoCA
Annemieke Aartsma Rus
Professor Of Translational Genetics, Department Of Human Genetics · Leiden University Medical Center (Netherlands)
Annette Bakker
CEO · Childrens Tumor Foundation
Bos
Board Member · SMA Europe
Daria Julkowska
Head of Strategy & Partnerships in Health · ERDERA - INSERM
Dariusz Adamczewski
Managing Director · Children’s Tumor Foundation Europe
David Allison
Chief Executive Officer · TREAT-NMD
Debra Bellon
Strategic Engagement Manager · Rare Diseases International
Derek Ansel
Vice President, Therapeutic Strategy Lead, Rare DiseaseRare Disease · Worldwide Clinical Trials
Dorota Zgodka
Steering Committee member · HTAi Rare Disease Interest Group
Enrico Costa
Head of International Affairs Office & Italian Delegate at the COMP · Italian Medicines Agency (AIFA)
Fabienne Bartoli
Inspector General · French National Authority for Health
Gulcin Gumus
Research and Policy Senior Manager · EURORDIS
Hicham ALAOUI
Patient · AMIS FSH / FSHD EUROPE